Monday, March 16, 2009

We have created this blog to keep our wonderful friends and family updated on Julia's treatment and progress as she battles leukemia.

On Thursday March 12th Sharon, Jeff and Julia headed to Egleston in Atlanta to have testing done for some ongoing symptoms that Julia had been experiencing over the last couple of months. Her white blood cell count was higher than normal and her iron was low. Persistent fevers had also occurred along with general tiredness and unusual lack of energy for an 8 yr old. Her doctors had long suspected something viral, but a definite diagnosis and course of treatment had been elusive. On Thursday, March 12, in response to another blood test showing low iron, her local doctors wanted to do a blood transfusion. After advising the physicians at Egleston Children's Hospital about the recent blood test and the idea of a blood transfusion, the physicians at Egleston advised Sharon and Jeff to bring Julia on to the Egleston Hospital that day. The transfusion could complicate the diagnosis.

After arriving at Egleston Thursday evening they expected to be put in a room and testing begin on Friday morning but the opposite was true. The Dr's. began blood work and various testing and continued through out the night. A couple of the Dr's. had agreed by morning that the prognosis was leukemia. This came as a bit of a shock, as you can imagine. You never expect to hear those words about your child or loved one!

They admitted Julia to a room about 4am on Friday morning and she finally was able to rest a little. Calls went out to family and friends early Friday morning. Alice Faye and Andrew (Sharon's parents) headed to Atlanta on Friday morning.

Saturday, March 14th various family and friends came to offer support. We were among those who visited Julia. She was pale and somewhat quiet but seemed good. She walked toward us with her IV pole attached. They were giving her fluids and some antibiotics. She played for several hours with her cousins and saw several visitors before she wilted.

Sunday, March 15th Julia received a blood transfusion to build up her strength before starting procedures and chemo. The blood transfusion went well.

Monday, March 16th Julia received some platelets to help build her up but she had an allergic reaction. She turned as red as a lobster. The Dr's gave her Benadryl to try and help alleviate the symptoms. After Julia was stable and the anestisiologist was satisfied that she was ok they got her ready for the bone marrow extraction and spinal tap.

Julia entered the operating room around 2:oo p.m. today and they put in a port for the chemo, they did a spinal tap to draw spinal fluid and they extracted bone marrow from her hip. We got news around 4:00p.m. that she was recovering and everything went well. One thing we learned was that the bone marrow would not be back for a week and a half to 2 weeks. The spinal fluid was clear...which the Dr. said was a good sign. The official results are not in yet but that was a comment that was made. If all goes well... the Drs. want to start the chemo tonight. We are not sure yet how many days straight she will have chemo. They had discussed 7 or 5 days of straight chemo but as of this moment we have not heard which. As we understand it....the bone marrow results will determine the treatment after the next 30 days.

Please continue to pray for Julia, Jeff and Sharon as she is just beginning this battle. She was tired and concerned about what was going on but she was doing well following the procedures today.

We will update again tomorrow! Thank you all again for the prayers and the precious gifts! The room is so full of balloons and stuffed animals, they can barely move!

18 comments:

  1. We are praying for sweet little Julia. Please let us know if there is anything at all that we can do. Thanks for posting this. It will be a great way for us to keep up with Julia's progress :
    Love you all!

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  2. If there is ANYTHING that I can do, please call or email me. 228-0549 susanbarwick@mchsi.com I will check this website several times daily. Love you. Susan

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  3. My mom asked me to write that you may leave messages to the family and we will see that they get them! Thanks

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  4. Neill and I have started a facebook page for Julia. The riders at my barn can't wait to send her messages and pictures. Hopefully it will be up and running tonight. All of the people and ponies at Foxwater send love and prayers for Jeff, Sharon and JuJu. Mary Ellen Payne

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  5. Jeff and Sharon,
    Just wanted to let you know that all of us here at Commercial Bank are praying for Julia and for you as well that God will give you all the strength and the patience to get through this - one day at a time! Bless you all,
    Julie Cannady

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  6. Jeff and Sharon,

    I wanted to let you know that we are praying for you both to have the strength to make it through this trying time with Julia. I know god will bless you with strength, patience, understanding and faith to help you throught his time. We pray that Julia has a speedy recovery and is able to return home soon. You have been added to our personal prayer list as well as the prayer list at church.

    Ruby Moore and family

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  7. Julia, Jeff and Sharon,

    We are all in prayer for each of you. Please keep up updated as to specific prayer requests you have. Please please let us know if we can do anything for you.
    David & Latrelle & boys

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  8. Julia, Jeff, and Sharon.
    We are praying for your family daily. If you need anything do not hesitate to call us. My parents live in Atlanta so if you need extra support while you are there or a place to crash just let me know. I also travel that way at least once a month so I would be glad to transport anyone needing a ride.
    We love you all.

    Tammy, Danny, and Mary-Catherine

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  9. I am so glad that someone thought to start this blog. We will be praying and checking in daily for specific ways that we can pray for you. Lots of prayers from Costa Rica!!!
    The Louderback Family

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  10. Jeff, Sharon and Julia,
    We are all praying for Julia. We so wish there was more we could do but please know we are here for you. We are praying daily! We know that God is the Ultimate Healer and we know how awesome He is! We will continue to pray that He will help Julia through this and one day she will be able to share what He did for her.
    We love you guys!
    The Hopper's

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  11. Jeff, Sharon and Julia,
    You all have been on my mind since the moment we heard your news. I pray that God will give you the strength, courage and Peace that passes all understanding to get you through this trying time. I pray that Julia's doctors will have the wisdom and skill to make the right decisions in her treatment. Most of all, I pray that God will wrap his loving arms around Julia and heal her precious body. I hope you are able to find comfort in knowing how many are loving you and lifting you up. We look forward to good news in the days to come.

    Frances Patterson

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  12. Jeff and Sharon I am just devastated by Julia's diagnosis. She is one of the sweetest little girls I have ever had the privilege of knowing. You are all constantly in my prayers. I know God is working miracles in this sweet child right now.

    Nancy Owens

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  13. Hey Johnsons. We are praying for you guys. Stay strong and keep your eyes on God. With him all things are possible:)

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  14. Jeff, Sharon, and Julia,
    You have been on our minds and in our prayers since the minute we heard the news of Julia'a diagnosis! We pray the Lord will give you strength and healing every day, Julia. Please call if there is anything we can do for you anytime.
    Love and prayers,
    Dale, D.D., Carson, and Kendell

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  15. Julia, I am so glad that you got to spend the weekend at home. I will be praying for you tomorrow and hoping all goes well. You are a special girl to me and I love you lots.
    It was fun getting to talk to you on the phone last week. I will be in Thomasville in a couple of weeks and I want to see you then. Stay sweet and brave and strong.

    Mrs. Carole

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  16. Julia,
    I am glad you had a good weekend at home. I know you don't know me, but I go to FBC and I sit above in the balcony where I have seen you lots. I love your pretty curly hair-mine is straight and blah. :) I have known your Aunt Melissa a long time. You remember to keep smiling that beautiful smile and hang in there! My whole family is praying for you to get better real fast.
    Miss Amy Webb and family

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  17. Julia, so happy that the ride home was a good one. Missing you at school!

    Mrs. Crew

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  18. Julia,
    This is such wonderful and awesome news! Have a safe trip on Sunday. We love you and keep you in our prayers.
    Love, Miss Janet and Mr Clarke

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