5/8/09 UPDATE
We found out this afternoon that our doctor in Atlanta does not want Julia to be dismissed from the hospital until her blood counts start to go back up. As of this afternoon, they did not have a bed available at Egleston. Their plans are as soon as they have a bed available, they are coming here to pick up Julia in one of their ambulances & take her back to Atlanta. She will probably have to have a platelet transfusion in the next day or so. Our hope is that she can get to Atlanta before that has to be done. They still want her to have her normal treatment appointment Monday morning, since neither of the drugs she'll receive Monday should affect her blood counts. Thank you so much for your prayers. Our next update will more than likely be while we're in Atlanta.
Love,
Sharon & Jeff
Friday, May 8, 2009
FIRST STAY AT ARCHBOLD
5/8/09-Friday
Dear friends,
We are having our first experience with a fever!! Julia started running a temperature of 100.8 on Wednesday late afternoon. I had gone to Perry, Ga on Wednesday morning to a horse show that I have been going to for 10-15 years. I was reluctant to go, but knew it would be good for me to have some "Mom" time. Jeff called me as soon as he realized it and headed to the emergency room at Archbold. I waited in Perry in my hotel room to see what the plan was (long prayerful wait!). If they had decided to send her to Atlanta, then I would have gone on up there, but they decided it could be managed here, so I arrived at the hospital in T'ville about 1:00a.m. They did blood work on her, and we are basically waiting to see if the culture grows any sort of bacteria. In the mean time she is receiving I.V. antibiotics. If the culture does not grow a bacteria, then we will have given antibiotics anyway as a precaution. They said "shoot now, ask questions later". She has cold/cough symptoms that I guess she caught from me. I thought my symptoms were due to allergies and had tried to be so careful around her. I've decided that if Jeff or I get sick with anything again, then one of us will move out!! We should know by this evening whether or not her blood sample grows anything, so far nothing and the fever has gone. She should be dismissed Saturday morning providing her congestion does not cause anymore serious problems. They did another chest x-ray this morning. Also her platelets have dropped very low and she is very neutropenic (no immune system). More than likely she will have to receive platelets today, and we will find out this afternoon what our plan is for our Monday appointment. Please pray for her that the platelet transfusion goes well and for her to have some relief from her congestion/cough. Also, please pray that her port continues to work o.k. It has certainly been accessed a lot the last couple of days!! It makes you very uneasy!! They have no problem putting something in it, but sometimes they have difficulty drawing blood back out of it.
Thank you for your prayers.
Love,
Sharon
Dear friends,
We are having our first experience with a fever!! Julia started running a temperature of 100.8 on Wednesday late afternoon. I had gone to Perry, Ga on Wednesday morning to a horse show that I have been going to for 10-15 years. I was reluctant to go, but knew it would be good for me to have some "Mom" time. Jeff called me as soon as he realized it and headed to the emergency room at Archbold. I waited in Perry in my hotel room to see what the plan was (long prayerful wait!). If they had decided to send her to Atlanta, then I would have gone on up there, but they decided it could be managed here, so I arrived at the hospital in T'ville about 1:00a.m. They did blood work on her, and we are basically waiting to see if the culture grows any sort of bacteria. In the mean time she is receiving I.V. antibiotics. If the culture does not grow a bacteria, then we will have given antibiotics anyway as a precaution. They said "shoot now, ask questions later". She has cold/cough symptoms that I guess she caught from me. I thought my symptoms were due to allergies and had tried to be so careful around her. I've decided that if Jeff or I get sick with anything again, then one of us will move out!! We should know by this evening whether or not her blood sample grows anything, so far nothing and the fever has gone. She should be dismissed Saturday morning providing her congestion does not cause anymore serious problems. They did another chest x-ray this morning. Also her platelets have dropped very low and she is very neutropenic (no immune system). More than likely she will have to receive platelets today, and we will find out this afternoon what our plan is for our Monday appointment. Please pray for her that the platelet transfusion goes well and for her to have some relief from her congestion/cough. Also, please pray that her port continues to work o.k. It has certainly been accessed a lot the last couple of days!! It makes you very uneasy!! They have no problem putting something in it, but sometimes they have difficulty drawing blood back out of it.
Thank you for your prayers.
Love,
Sharon
Saturday, May 2, 2009
COMPUTER!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
5/2/09
Dear friends & familly,
WE FINALLY GOT OUR COMPUTER!!!!!! And this time it works and it's downstairs!!!!! I mean two things by that. The 1st thing I mean by that is it hasn't been messed up by anyone. The second thing I mean by that is..............................when they got it set up the internet WOULD NOT WORK!!!!!!!!!!!!! We really got our computer yesterday but we got it fixed today. An AT&T guy came this morning and fixed it. SO NOW WE HAVE OUR COMPUTER!!!!!!!!!!!!!!!!!!!!
Love,
Julia.
Julia has had a good week this past week. She was at school all day on Wednesday, Thursday, & Friday! She has seemed to be a lot like her normal self this past week, which we have been very glad to see! We're heading back to Atlanta in the morning. Julia will have her clinic appointment on Monday @ 8:00. Thank you again for your prayer support!
Love,
Sharon & Jeff
Dear friends & familly,
WE FINALLY GOT OUR COMPUTER!!!!!! And this time it works and it's downstairs!!!!! I mean two things by that. The 1st thing I mean by that is it hasn't been messed up by anyone. The second thing I mean by that is..............................when they got it set up the internet WOULD NOT WORK!!!!!!!!!!!!! We really got our computer yesterday but we got it fixed today. An AT&T guy came this morning and fixed it. SO NOW WE HAVE OUR COMPUTER!!!!!!!!!!!!!!!!!!!!
Love,
Julia.
Julia has had a good week this past week. She was at school all day on Wednesday, Thursday, & Friday! She has seemed to be a lot like her normal self this past week, which we have been very glad to see! We're heading back to Atlanta in the morning. Julia will have her clinic appointment on Monday @ 8:00. Thank you again for your prayer support!
Love,
Sharon & Jeff
Wednesday, April 29, 2009
Update
Last time I was in Atlanta they said I would probably need blood next week. A nurse named Ann said she thought my port turned upside down. But it really didn't. My dad has to give me shots in the arm and they really hurt. OUCH!!!!!! But he has done a good job. Only eight more shots to go!!!!!!!!! Other than the shots I'm feeling fine.
Love,
Julia.
Julia is right. Other than the shots, I'm feeling fine. She is doing very well in all aspects of her treatment though. Her need to get blood next week is expected by the doctors as one of the drugs will really play havoc on her counts. We continue to be amazed at the outpouring of love by everyone and it is greatly appreciated by Julia, Sharon and me. We will give another update soon. Thanks again.
Love Jeff and Sharon
Sunday, April 26, 2009
When we're leaving
Dear friend & family,
We just ate lunch and are about to hit the road. My appointment is tomorrow at 1230 pm.
I will tell you how the appointment went later when we get home.
Love,
Julia.
Saturday, April 25, 2009
My day........... well yesterday
Dear friends & family,
Yesterday I stayed at school for the whole day and went to the parade and saw my friend Kristen Mulford. She was in the parade. She was on the Flowers bread company float. I told her to give me some donuts that were on the float but she didn't. My cousin Madison went with us. My uncle Mike and my cousin Pamela came down from Macon. Uncle Mike and My dad went fishing. So Pamela is staying with us!!!!!!!!! HOOOOOOOOOOORRRRRRRRRRRRRAAAAAAAAAAAAYYYYYYYYYY!!!!!!!!!!!!!!!!!!!!!!!!!! Also my class play was yesterday. THAT WAS FUN!!!!!!!!!!!!!! We all did a GREAT job.
Your friend,
JULIA!!!!!
Wednesday, April 22, 2009
Just talking about today
Dear friends & family,
Today was the lower school spelling bee. It was for the 1-3 grade. Three kids from each class participate so there are six kids in each grade that participate. Sally Patterson won in the second grade, Isabella Grayson won in the first grade and Grayson Durhum in the third grade. I would like to congratulate Kristen Mulford, Ella Simmons, and Joe Parker. They are all in my class and they participated. And I am also glad because our new principal Mrs. Harper got to give words to everybody. She did really well.I was not at school when the practice bees were so I was not able to be in the spelling bee this year. I will hopefully be in it next year because they are really fun.I am going to be at school like normal but I will go home a little after lunch. I went home early today but was not sick. If I was sick I might have to go to the hospital.I just went home because I was tired and I had a little headache. But I think I will be there for the class play. It is going to be a lot of fun I think. Our class play is about earth day, how we should treat our earth,and how we should recycle.
Love,
Julia
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