Tuesday, June 30, 2009

Lots of fun stuff to say!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Dear friends & family,
I had so much fun at camp!!!! My favorite thing at camp was gold panning. I found lots of jewels! And I liked the rock wall too. The first time I didn't make it to the top because my platelets were low so I only made it half way so I got some platelets after my first try on the rock wall. Then the next time I tried I made it to the top!!!!!!!! Oh! And when we went gold panning our cabin mom Mrs. Judy said ssshhh because their was a doe across the lake anjd it ended up about 5 feet from us. And after my parents picked me up we went back to the mountains for the weekend and went to Atlanta on Sunday. My appointment on Monday went FABULOUS!!!!!!!! In an odd way because I didn't get treatment but all of my counts were fine except for anc was low but anyways right before we even got into a room a nurse named Dianne whispered to daddy "Do you think Julia would want to go to a concert?" And before my dad could answer she asked me if I wanted to go to a KSM, DAVID ARCHILETTA, AND DEMI LAVATO CONCERT!!!!!!!! It started at 7:00 & ended at 9:50 IT WAS GREAT!!!!!!!!! We got home at 2:00 am. All in all it was a great week!

Tuesday, June 16, 2009

Dear friends & family ,
I went to church on Sunday with some of my family. I am going to get baptised soon because I accepted Jesus into my heart.
Love,
Julia
P.S. Camp Sunshine starts on SUNDAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I will be there until Friday.

Tuesday, June 9, 2009

Bible school & camp

Dear friends & family, 6/9/09/
Today I went to Bible school and had lots of fun with my friends. Last clinic visit we only went to have blood work and the shots we have to give. Oh! And at the hospital they have a camp called Camp Sunshine. It lasts for a whole week and I'm going!! It is for people that have cancer or have been through cancer and when you are an adult you can help. If you want to learn more about Camp Sunshine just type in Camp Sunshine on the internet.
Love,
Julia.

Wednesday, June 3, 2009

Just saying HI!!

Dear friends & family,
I finally got my stitches out!!! At first I wasn't sure if it would hurt or not. It didn't hurt at all!! I guess my mom already told you how my blood counts were if you haven't read that post yet they were fabulous!!! Hope you have a great rest of the week!!
Love,
Julia

Tuesday, June 2, 2009

6/2/09 HOME AGAIN

Dear Friends & Family,
Yesterday's appointment went very well. We were there all day, because Julia had to receive about 7 hours of fluids before & after one of the chemo drugs. Julia's neutrophil count was up to 1,580 (normal range is 1490 - 7970). Woo Hoo!!!! All of her blood counts were within normal ranges except her white blood count was 4.06 (normal range 4.5-13.5) and some of her blood work is indicating some high ranges with her liver. The doctor said it is common to see these liver components run high. They usually return to normal after treatment, but he did say that chicken pox could also affect the liver which was another reason to be watching these very closely. But, speaking of chicken pox, her biopsy results finally came back yesterday afternoon before we left. Julia did not have chicken pox!! All that we learned is that her bumps were a reaction to something!?! What, we do not know. The doctor said that there is a silver lining to this black cloud. Since Julia had not received any chemo drugs since 5/11, we had a chance to see her blone marrow go to work. She seems to have healthy marrow!!! A big praise!! This also allowed her blood counts to build up higher before she starts getting hit hard again with more chemo drugs which lower blood counts. Chemo drugs are good & bad at the same time. Sometimes it's hard allowing these powerful drugs to be given to your child, worrying about possibe side effects even into her future, but knowing that they are needed to give her the best cure possible. We just have to have faith that God has her in His hands.
.....All in all, it was a good day.
Love,
Sharon, Jeff, & Julia
P.S. Jeff has to give Julia chemo shots Tues, Wed, Thurs. and again next week. These shots are under the skin, but it hurts when the medicine goes in. Please pray for Jeff. He hates giving them to her, & Julia is not always so brave to receive them.

Saturday, May 30, 2009

Update

Dear friends & family,
We are heading back up to Atlanta tomorrow. I am going to beauty and the beast tonight with my senior buddy Margret Singletary. My good friend Kristen Mulford came over to my house today. That was fun. Anyway last time we went up to Atlanta the Dr. said my blood counts were too low to do the procedur. They need to be 750 but they were 740. My sugar and protein were low too. Also on Monday I get my biopsy stitches taken out. I hope my blood counts will be high enough!!
Love,
Julia.

Sunday, May 24, 2009

5/24-SUNDAY MORNING STILL IN ATLANTA

We are still in Atlanta, but I feel pretty certain they will let us go home today on oral anti-viral drugs. Julia's bumps are less red today than yesterday. They have seemed a little better each day but sometimes still itchy. Her creatinine was a little elevated yesterday but down some today, which is probably a result of the anti-viral medicine. They will continue to monitor that. Julia has no appetite, which is probably a result of chemo drugs.
Hopefully we will be home later this afternoon. As always, thank you for your prayers & concern.
Love,
Sharon, Jeff, & Julia