Dear friends & family ,
I went to church on Sunday with some of my family. I am going to get baptised soon because I accepted Jesus into my heart.
Love,
Julia
P.S. Camp Sunshine starts on SUNDAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I will be there until Friday.
Tuesday, June 16, 2009
Tuesday, June 9, 2009
Bible school & camp
Dear friends & family, 6/9/09/
Today I went to Bible school and had lots of fun with my friends. Last clinic visit we only went to have blood work and the shots we have to give. Oh! And at the hospital they have a camp called Camp Sunshine. It lasts for a whole week and I'm going!! It is for people that have cancer or have been through cancer and when you are an adult you can help. If you want to learn more about Camp Sunshine just type in Camp Sunshine on the internet.
Love,
Julia.
Today I went to Bible school and had lots of fun with my friends. Last clinic visit we only went to have blood work and the shots we have to give. Oh! And at the hospital they have a camp called Camp Sunshine. It lasts for a whole week and I'm going!! It is for people that have cancer or have been through cancer and when you are an adult you can help. If you want to learn more about Camp Sunshine just type in Camp Sunshine on the internet.
Love,
Julia.
Wednesday, June 3, 2009
Just saying HI!!
Dear friends & family,
I finally got my stitches out!!! At first I wasn't sure if it would hurt or not. It didn't hurt at all!! I guess my mom already told you how my blood counts were if you haven't read that post yet they were fabulous!!! Hope you have a great rest of the week!!
Love,
Julia
I finally got my stitches out!!! At first I wasn't sure if it would hurt or not. It didn't hurt at all!! I guess my mom already told you how my blood counts were if you haven't read that post yet they were fabulous!!! Hope you have a great rest of the week!!
Love,
Julia
Tuesday, June 2, 2009
6/2/09 HOME AGAIN
Dear Friends & Family,
Yesterday's appointment went very well. We were there all day, because Julia had to receive about 7 hours of fluids before & after one of the chemo drugs. Julia's neutrophil count was up to 1,580 (normal range is 1490 - 7970). Woo Hoo!!!! All of her blood counts were within normal ranges except her white blood count was 4.06 (normal range 4.5-13.5) and some of her blood work is indicating some high ranges with her liver. The doctor said it is common to see these liver components run high. They usually return to normal after treatment, but he did say that chicken pox could also affect the liver which was another reason to be watching these very closely. But, speaking of chicken pox, her biopsy results finally came back yesterday afternoon before we left. Julia did not have chicken pox!! All that we learned is that her bumps were a reaction to something!?! What, we do not know. The doctor said that there is a silver lining to this black cloud. Since Julia had not received any chemo drugs since 5/11, we had a chance to see her blone marrow go to work. She seems to have healthy marrow!!! A big praise!! This also allowed her blood counts to build up higher before she starts getting hit hard again with more chemo drugs which lower blood counts. Chemo drugs are good & bad at the same time. Sometimes it's hard allowing these powerful drugs to be given to your child, worrying about possibe side effects even into her future, but knowing that they are needed to give her the best cure possible. We just have to have faith that God has her in His hands.
.....All in all, it was a good day.
Love,
Sharon, Jeff, & Julia
P.S. Jeff has to give Julia chemo shots Tues, Wed, Thurs. and again next week. These shots are under the skin, but it hurts when the medicine goes in. Please pray for Jeff. He hates giving them to her, & Julia is not always so brave to receive them.
Yesterday's appointment went very well. We were there all day, because Julia had to receive about 7 hours of fluids before & after one of the chemo drugs. Julia's neutrophil count was up to 1,580 (normal range is 1490 - 7970). Woo Hoo!!!! All of her blood counts were within normal ranges except her white blood count was 4.06 (normal range 4.5-13.5) and some of her blood work is indicating some high ranges with her liver. The doctor said it is common to see these liver components run high. They usually return to normal after treatment, but he did say that chicken pox could also affect the liver which was another reason to be watching these very closely. But, speaking of chicken pox, her biopsy results finally came back yesterday afternoon before we left. Julia did not have chicken pox!! All that we learned is that her bumps were a reaction to something!?! What, we do not know. The doctor said that there is a silver lining to this black cloud. Since Julia had not received any chemo drugs since 5/11, we had a chance to see her blone marrow go to work. She seems to have healthy marrow!!! A big praise!! This also allowed her blood counts to build up higher before she starts getting hit hard again with more chemo drugs which lower blood counts. Chemo drugs are good & bad at the same time. Sometimes it's hard allowing these powerful drugs to be given to your child, worrying about possibe side effects even into her future, but knowing that they are needed to give her the best cure possible. We just have to have faith that God has her in His hands.
.....All in all, it was a good day.
Love,
Sharon, Jeff, & Julia
P.S. Jeff has to give Julia chemo shots Tues, Wed, Thurs. and again next week. These shots are under the skin, but it hurts when the medicine goes in. Please pray for Jeff. He hates giving them to her, & Julia is not always so brave to receive them.
Saturday, May 30, 2009
Update
Dear friends & family,
We are heading back up to Atlanta tomorrow. I am going to beauty and the beast tonight with my senior buddy Margret Singletary. My good friend Kristen Mulford came over to my house today. That was fun. Anyway last time we went up to Atlanta the Dr. said my blood counts were too low to do the procedur. They need to be 750 but they were 740. My sugar and protein were low too. Also on Monday I get my biopsy stitches taken out. I hope my blood counts will be high enough!!
Love,
Julia.
We are heading back up to Atlanta tomorrow. I am going to beauty and the beast tonight with my senior buddy Margret Singletary. My good friend Kristen Mulford came over to my house today. That was fun. Anyway last time we went up to Atlanta the Dr. said my blood counts were too low to do the procedur. They need to be 750 but they were 740. My sugar and protein were low too. Also on Monday I get my biopsy stitches taken out. I hope my blood counts will be high enough!!
Love,
Julia.
Sunday, May 24, 2009
5/24-SUNDAY MORNING STILL IN ATLANTA
We are still in Atlanta, but I feel pretty certain they will let us go home today on oral anti-viral drugs. Julia's bumps are less red today than yesterday. They have seemed a little better each day but sometimes still itchy. Her creatinine was a little elevated yesterday but down some today, which is probably a result of the anti-viral medicine. They will continue to monitor that. Julia has no appetite, which is probably a result of chemo drugs.
Hopefully we will be home later this afternoon. As always, thank you for your prayers & concern.
Love,
Sharon, Jeff, & Julia
Hopefully we will be home later this afternoon. As always, thank you for your prayers & concern.
Love,
Sharon, Jeff, & Julia
Friday, May 22, 2009
BACK IN THE HOSPITAL AGAIN!!!
5/22/09-Friday p.m.
Yesterday was not a good day!! My mother & I came up for Julia's clinic appointment on Thursday. When we got in the room the nurses were asking how our week had been and any medicines Julia had been on. Well, the past few days at home, we had noticed a few "bug bites" on Julia's arms, no big deal, just a few bites. Of course we were wondering what had bitten her, since she had not been outside hardly at all. We started suspecting our dog, Stanley, & wondered if he had fleas, which he never has!! Jeff & I did not have any bites & we saw no fleas on the dog. Well, when we got to the clinic, I mentioned these bites. That was like pressing an alert button with these nurses!!! They immediately assumed chicken pox, which had never crossed our minds. We felt so bad, because chicken pox is a major concern for children with leukemia, and we had been out in the waiting room with other children and had stayed at the Ronald McDonald House the night before. They got the doctor in the room quickly & he looked at Julia's bumps. He did not think the bumps looked like typical chicken pox, but since Julia had chicken pox vaccines, he said it could be possible for her symptoms to present differently. Next, they got 3 doctors from infectious disease alll cloaked & masked up to look at Julia. They were not certain either, so they said they would need to get a sample of some of the bumps (like a skin scrape for a dog). Meanwhile, I had called Jeff, told him to get Stanley to the vet immediately, have him skin scraped for any possible mites, which he had none. Jeff then got a ride to Atlanta with some friends. Julia got very upset at the sight of these new doctors & very frightened about the "skin scrape", so they had to give her some concious sedation for that procedure. After spending about 5 1/2 hours in that exam room, they finally moved us into a hospital room for Julia to receive I.V. anti-viral medicines. The concern with chicken pox is that it is a rapidly spreading respiratory virus that can quickly move into the lungs & cause pneumonia. They did a chest x-ray, which was o.k. and the skin sample turned up negative for the chicken pox virus. But they still want to treat her as if it could be chicken pox. We have since had many dermatologists look at her & no one seems to know what it might be. One of the infectious disease doctors came & took pictures of Julia's bumps since most doctors these days don't ever see chicken pox anymore. I told her that should be the only time she is ever photographed topless!! Today, they decided that they should do a biopsy of a couple of the bumps to see if they could learn anything that way. It will take a few days for those results to come back. Meanwhile, we continue on I.V. antiviral and maybe go home tomorrow or Sunday on oral antiviral meds. Interestingly, an older gentleman dermatologist came in & looked at her briefly today and asked if we had fleas in our house?!!
On the bright side, Julia's blood counts have come up a lot and they have postponed her next chemo treatment again until next Thursday. Hopefully, our next blog posting will come from home. Thank you for your many prayers.
Love,
Sharon, Jeff, & Julia
Yesterday was not a good day!! My mother & I came up for Julia's clinic appointment on Thursday. When we got in the room the nurses were asking how our week had been and any medicines Julia had been on. Well, the past few days at home, we had noticed a few "bug bites" on Julia's arms, no big deal, just a few bites. Of course we were wondering what had bitten her, since she had not been outside hardly at all. We started suspecting our dog, Stanley, & wondered if he had fleas, which he never has!! Jeff & I did not have any bites & we saw no fleas on the dog. Well, when we got to the clinic, I mentioned these bites. That was like pressing an alert button with these nurses!!! They immediately assumed chicken pox, which had never crossed our minds. We felt so bad, because chicken pox is a major concern for children with leukemia, and we had been out in the waiting room with other children and had stayed at the Ronald McDonald House the night before. They got the doctor in the room quickly & he looked at Julia's bumps. He did not think the bumps looked like typical chicken pox, but since Julia had chicken pox vaccines, he said it could be possible for her symptoms to present differently. Next, they got 3 doctors from infectious disease alll cloaked & masked up to look at Julia. They were not certain either, so they said they would need to get a sample of some of the bumps (like a skin scrape for a dog). Meanwhile, I had called Jeff, told him to get Stanley to the vet immediately, have him skin scraped for any possible mites, which he had none. Jeff then got a ride to Atlanta with some friends. Julia got very upset at the sight of these new doctors & very frightened about the "skin scrape", so they had to give her some concious sedation for that procedure. After spending about 5 1/2 hours in that exam room, they finally moved us into a hospital room for Julia to receive I.V. anti-viral medicines. The concern with chicken pox is that it is a rapidly spreading respiratory virus that can quickly move into the lungs & cause pneumonia. They did a chest x-ray, which was o.k. and the skin sample turned up negative for the chicken pox virus. But they still want to treat her as if it could be chicken pox. We have since had many dermatologists look at her & no one seems to know what it might be. One of the infectious disease doctors came & took pictures of Julia's bumps since most doctors these days don't ever see chicken pox anymore. I told her that should be the only time she is ever photographed topless!! Today, they decided that they should do a biopsy of a couple of the bumps to see if they could learn anything that way. It will take a few days for those results to come back. Meanwhile, we continue on I.V. antiviral and maybe go home tomorrow or Sunday on oral antiviral meds. Interestingly, an older gentleman dermatologist came in & looked at her briefly today and asked if we had fleas in our house?!!
On the bright side, Julia's blood counts have come up a lot and they have postponed her next chemo treatment again until next Thursday. Hopefully, our next blog posting will come from home. Thank you for your many prayers.
Love,
Sharon, Jeff, & Julia
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