Dear Friends & Family,
We have had many people tell us that they have trouble posting comments on our blog spot. This blog spot page was set up for us by my wonderful sister in law, Melissa Clark, when Julia was initially diagnosed. She set this up for us at a time when Jeff & I could not have possibly figured out how and when we certainly didn't have the time. Since so many of you have had trouble leaving comments, we decided to set up a CaringBridge page. I think it will be more user friendly for everyone. The web site is www.caringbridge.org. When you get to this site, go to "visit a website" & type in juliajohnson with no spaces. If you would like to leave a comment, you can sign in at the guestbook. We love to receive your comments. Thanks again to Melissa!
Hope to hear from you soon!
Sharon, Jeff, & Julia
Wednesday, August 19, 2009
Thursday, August 13, 2009
Dalton
Julia's appointment went well last week. She got medicine in her spine & in her port. She continues to be so brave! Her blood counts have remained very good, which is good for starting school. (Let's all pray for NO SWINE FLU in our schools!!) After her appointment, we all went to Dalton for the rest of the weekend to visit my aunt & uncle. Julia got to swim in their pool, and we went to the aquarium in Chatanooga on Saturday. We had a nice visit. Julia's next appointment is this Monday morning (8/17). She will miss Brookwood's registration but should be at school on Tuesday morning. She is ready to see all her friends again! On Sunday, we are planning to go to an Atlanta Braves baseball game. Camp Sunshine has gotten donated tickets for children for that game, and they will have an opportunity to meet some players & have dinner there.
Thank you all for your sweet words of encouragement. They mean so much to us. The last comments brought tears to my eyes. I think all this travelling back & forth has gotten me a little weary, but with God's help we'll just keep on keeping on & doing what we have to do. We know that we are very blessed compared to others. We look forward to "Maintenance" in November.
Thanks again for all your prayers.
Love,
Sharon
Thank you all for your sweet words of encouragement. They mean so much to us. The last comments brought tears to my eyes. I think all this travelling back & forth has gotten me a little weary, but with God's help we'll just keep on keeping on & doing what we have to do. We know that we are very blessed compared to others. We look forward to "Maintenance" in November.
Thanks again for all your prayers.
Love,
Sharon
Tuesday, August 4, 2009
8/4/09-Wednesday evening
Dear Friends,
Tomorrow we are heading back up to Atlanta for Julia's appointment Thursday morning @ 8:00. She will be receiving 2 drugs in her port (vincristine & methotrexate) & 1 drug in her spine (methotrexate). We have about another month in this phase, and then Julia will be in a treatment phase called "Delayed Intensification". This phase will be a hard phase for Julia. Please pray for her in the next few months, especially when she starts school. We want her to stay well & be able to be at school. This should end some time in November, then we will have monthly visits. Julia has felt really well lately & we are so thankful for her good feeling days. Thank you all for you prayers and for everyone who has been following our blog spot. We appreciate all your words of encouragement & the love you all have shown to us.
Love,
Sharon & Jeff
P.S. Julia says hi!! :)
Tomorrow we are heading back up to Atlanta for Julia's appointment Thursday morning @ 8:00. She will be receiving 2 drugs in her port (vincristine & methotrexate) & 1 drug in her spine (methotrexate). We have about another month in this phase, and then Julia will be in a treatment phase called "Delayed Intensification". This phase will be a hard phase for Julia. Please pray for her in the next few months, especially when she starts school. We want her to stay well & be able to be at school. This should end some time in November, then we will have monthly visits. Julia has felt really well lately & we are so thankful for her good feeling days. Thank you all for you prayers and for everyone who has been following our blog spot. We appreciate all your words of encouragement & the love you all have shown to us.
Love,
Sharon & Jeff
P.S. Julia says hi!! :)
Wednesday, July 29, 2009
Dear friends & family,
I got my long hairs cut off!! Small hairs were starting to grow in but we don't expect them to be there very long. Oh! My counts were as high as a normal persons!! So I went to get my teeth cleaned. I also went to Imagination Unlimited's camp today. Actually I went to my friend Kristen's house and she was going. And tonight I am going to a pampered chef party tonight!!
My cousin Pamela is coming Aug. 1!!!! School starts soon too!!
Love,
Julia
I got my long hairs cut off!! Small hairs were starting to grow in but we don't expect them to be there very long. Oh! My counts were as high as a normal persons!! So I went to get my teeth cleaned. I also went to Imagination Unlimited's camp today. Actually I went to my friend Kristen's house and she was going. And tonight I am going to a pampered chef party tonight!!
My cousin Pamela is coming Aug. 1!!!! School starts soon too!!
Love,
Julia
Tuesday, July 21, 2009
Macon
Dear friends & family,
A couple of Sundays ago I was baptized!! Oh and my first Thursday appointment went great! Our friend Bonnie Parish went with us she lives in Macon GA. After my appointment we went to Macon for a few days. That was fun! We went swimming and we went to a place called Lanes southern orchards. They grew corn, peaches, and pecans. Anyways we had a lot of fun.
Love,
Julia
A couple of Sundays ago I was baptized!! Oh and my first Thursday appointment went great! Our friend Bonnie Parish went with us she lives in Macon GA. After my appointment we went to Macon for a few days. That was fun! We went swimming and we went to a place called Lanes southern orchards. They grew corn, peaches, and pecans. Anyways we had a lot of fun.
Love,
Julia
Thursday, July 9, 2009
Dear friends & family, 7-9-09
Last appointment went great and my blood counts were really high! My cousin Madison went with me. Oh! And I am getting baptized this Sunday!
Love,
Julia
With Julia's brevity, I'll follow up with a little more detail. We started what's called the "intermim maintenance" stage of her treatment on Monday, 7/6. Her counts had improved drastically since the previous Monday, so we were very pleased with that. With this stage of her treatment, we will now be going every 10 days to Atlanta for a 2 month period. Then we will be in "delayed intensification", which is a hard phase of treatment & will be closer to a weekly schedule for 2 months. Then we will be in "maintenance", which will be monthly hospital visits & oral chemo at home. As best we can tell, that's what her schedule looks like, and her treatment should end around July 2011. Her appetite is not very good these days, and she has lost some weight. Her hair is beginning to grow back in on top, but I don't think she will keep it very long. She's been quite achy this week, but has kept good spririts. Sometimes we feel very blessed with Julia's situation when we meet other families with children who are much sicker, but what she is going through is very hard on her little body. Please pray for her complete healing and for her to have no long term problems from all these strong medications. We have so many local friends suffering from some form of cancer right now and many new friends we've met in Atlanta. I'd like to list some of these people if you would like to also pray for them. I'm sure some of you are praying for mutual friends already. As always, thank you for your love, prayers, & words of encouragement.
Thomasville: Michelle Watt, Carmen Devane, Stephannie Murray,Susan Waters, Tommy Williams, Karen Crosby, Debi McHenry
Atlanta: Leland Erickson, Pyper Sellers (also from T'ville),Olivia, Irery, Patrick Brannen (Athens), Ward Wright (Albany), Aniah, Nurses & Doctors who deal with these children daily
Maggie & Stephanie (nurses in Nicaragua now on mission trip)
Families of Maris Barrett & Alexus Woods
I'm sure I've left someone out. I apologize. Thanks again.
Love, Sharon
Last appointment went great and my blood counts were really high! My cousin Madison went with me. Oh! And I am getting baptized this Sunday!
Love,
Julia
With Julia's brevity, I'll follow up with a little more detail. We started what's called the "intermim maintenance" stage of her treatment on Monday, 7/6. Her counts had improved drastically since the previous Monday, so we were very pleased with that. With this stage of her treatment, we will now be going every 10 days to Atlanta for a 2 month period. Then we will be in "delayed intensification", which is a hard phase of treatment & will be closer to a weekly schedule for 2 months. Then we will be in "maintenance", which will be monthly hospital visits & oral chemo at home. As best we can tell, that's what her schedule looks like, and her treatment should end around July 2011. Her appetite is not very good these days, and she has lost some weight. Her hair is beginning to grow back in on top, but I don't think she will keep it very long. She's been quite achy this week, but has kept good spririts. Sometimes we feel very blessed with Julia's situation when we meet other families with children who are much sicker, but what she is going through is very hard on her little body. Please pray for her complete healing and for her to have no long term problems from all these strong medications. We have so many local friends suffering from some form of cancer right now and many new friends we've met in Atlanta. I'd like to list some of these people if you would like to also pray for them. I'm sure some of you are praying for mutual friends already. As always, thank you for your love, prayers, & words of encouragement.
Thomasville: Michelle Watt, Carmen Devane, Stephannie Murray,Susan Waters, Tommy Williams, Karen Crosby, Debi McHenry
Atlanta: Leland Erickson, Pyper Sellers (also from T'ville),Olivia, Irery, Patrick Brannen (Athens), Ward Wright (Albany), Aniah, Nurses & Doctors who deal with these children daily
Maggie & Stephanie (nurses in Nicaragua now on mission trip)
Families of Maris Barrett & Alexus Woods
I'm sure I've left someone out. I apologize. Thanks again.
Love, Sharon
Tuesday, June 30, 2009
Lots of fun stuff to say!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Dear friends & family,
I had so much fun at camp!!!! My favorite thing at camp was gold panning. I found lots of jewels! And I liked the rock wall too. The first time I didn't make it to the top because my platelets were low so I only made it half way so I got some platelets after my first try on the rock wall. Then the next time I tried I made it to the top!!!!!!!! Oh! And when we went gold panning our cabin mom Mrs. Judy said ssshhh because their was a doe across the lake anjd it ended up about 5 feet from us. And after my parents picked me up we went back to the mountains for the weekend and went to Atlanta on Sunday. My appointment on Monday went FABULOUS!!!!!!!! In an odd way because I didn't get treatment but all of my counts were fine except for anc was low but anyways right before we even got into a room a nurse named Dianne whispered to daddy "Do you think Julia would want to go to a concert?" And before my dad could answer she asked me if I wanted to go to a KSM, DAVID ARCHILETTA, AND DEMI LAVATO CONCERT!!!!!!!! It started at 7:00 & ended at 9:50 IT WAS GREAT!!!!!!!!! We got home at 2:00 am. All in all it was a great week!
I had so much fun at camp!!!! My favorite thing at camp was gold panning. I found lots of jewels! And I liked the rock wall too. The first time I didn't make it to the top because my platelets were low so I only made it half way so I got some platelets after my first try on the rock wall. Then the next time I tried I made it to the top!!!!!!!! Oh! And when we went gold panning our cabin mom Mrs. Judy said ssshhh because their was a doe across the lake anjd it ended up about 5 feet from us. And after my parents picked me up we went back to the mountains for the weekend and went to Atlanta on Sunday. My appointment on Monday went FABULOUS!!!!!!!! In an odd way because I didn't get treatment but all of my counts were fine except for anc was low but anyways right before we even got into a room a nurse named Dianne whispered to daddy "Do you think Julia would want to go to a concert?" And before my dad could answer she asked me if I wanted to go to a KSM, DAVID ARCHILETTA, AND DEMI LAVATO CONCERT!!!!!!!! It started at 7:00 & ended at 9:50 IT WAS GREAT!!!!!!!!! We got home at 2:00 am. All in all it was a great week!
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